Other Causes & Advocacy Sites

Alliance of Grandparents, a Support in Tragedy (www.agast.org)

Alliance of Grandparents, a Support in Tragedy is an all volunteer organization dedication to helping grandparents through the trauma, stress and grief after the loss of a grandchild.

Anencephaly Info (www.anencephalie-info.org)

Anencephaly is a congenital birth defect that occurs in approximately one in one thousand pregnancies. It is a neural tube defect, just as is spina bifida. Life expectancy for a baby with anencephaly after birth is just a few hours, sometimes a few days at most.

CLIMB (www.climb-support.org)

CLIMB, the Center for Loss in Multiple Birth, Inc. mission is to provide parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood.

HELLP Syndrome Society (www.hellpsyndrome.org)

HELLP Syndrome Society's mission is to become the premier partner to the world's medical community for the study and eventual cure of HELLP Syndrome, while at the same time, providing families who are affected by this condition with comfort, knowledge and a pathway to recovery from this extremely traumatic condition.

The March of Dimes (www.marchofdimes.com)

The March of Dimes had a wealth of information. Their Medical References section covers a wide range of perinatal and genetic topics. As well as an extensive Pregnancy and Newborn Loss area.

The Preeclampsia Foundation (www.preeclampsia.org)

The Preeclampsia Foundation's mission is to reduce maternal and infant illness and death due to preeclampsia by supporting innovative research, raising public awareness, and helping women access safe reproductive technology, support and care.

Spinal Muscular Atrophy Foundation (www.smafoundation.org)

The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

Zellweger Baby Support Network (www.zbsn.org)

The mission of the Zellweger Baby Support Network is to promote, advance, and improve awareness of Zellweger syndrome and other peroxisomal disorders, to assist, support, and aid, financially or otherwise, individuals and families affected by Zellweger syndrome.

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